Published Date:
14 February 2008
A PROUD dad held a fund-raising night to raise awareness of his little girl's skin condition and raised £5,500.
Adam Shaw was hoping to reach £2,000 and was overwhelmed with people's generosity.
His three-year-old daughter, Hollie, is battling against epidermolysis bullosa, a rare and painful genetic condition that causes skin to blister at the slightest friction.
The money will go to DebRA, a charity that helps families affected by the condition.
It was raised during a dinner at Berties, Elland, attended by 155 people. Now Mr Shaw is planning a similar event for 2009. "It was a brilliant night.
"I underestimated people's generosity," said Mr Shaw, of Greetland.
An auction included a boxing glove from Ricky Hatton which fetched £750, and there was also signed memorabilia from singer Will Young and footballer Ian Wright.
Entertainment was provided by Halle Rock, a pop band of musicians from Man-chester's Halle Orchestra.
Mr Shaw said DebRA was close to finding a cure.
"It just needs that final push and human trials could be starting in a year's time," he said. "Hollie is coping well at the moment."
Sufferers with severe symptoms are likely to contract a fatal skin condition.
Last year Mr Shaw completed the London Triathlon 2007 and raised £1,500 for DebRA.
And that galvanised his wife, Leah, into action and she is running this year's London Marathon.
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Last Updated:
14 February 2008 8:20 AM
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Source:
Evening Courier
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Location:
Halifax