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Grandad told it's too late to save eyesight after family raid savings to help



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Published Date: 07 March 2008
A FAMILY who clubbed together their savings to prevent their grandad going blind have been given the devastating news: It is too late.
Brian Turner, 74, of Oaks Green Mount, Rastrick, suffers from wet age-related macular degeneration in his left eye.

Doctors have told Brian his eyesight has deteriorated so rapidly in the past three weeks the drugs Avastin would have no benefit.

Daughter Julie Atkinson, 47, son Stuart Turner, 50, and grandchildren Debbie Atkinson, 24, Lisa Youell, 30, Charlie Turner, 16, Danielle Turner, 17, and 14-year-old Miles Turner were all prepared to pay for Avastin injections after a specialist from Calderdale and Huddersfield NHS Trust said funding would be denied.

Grandaughter Debbie said: "It's too late to save the first eye and there is a good chance the injections would have no benefit at such a late stage.

"The doctor also said it would not cost £6,300 but more like £20,000 because he would also need three scans in between injections."

Under current guidelines, patients will receive NHS treatment on their second eye should the condition begin affecting it. But there is no treatment for the first eye.

Debbie said: "The doctor gave my grandad some tests on the good eye and if there is any sign of developing wet macular degeneration, he would treat him within 48 hours on the NHS."

Despite the setback, the family are still campaigning for the NHS to provide Avastin free.

Debbie said: "Although it is too late for my granddad, we feel strongly about the postcode lottery of this funding."

Brian, married to wife Pauline for 52 years, said: "I want the Government to fund this drug for all those people who get this disease. It develops so quickly."

His plight has inspired Debbie and Lisa, both from Huddersfield, to set up an online campaign to get Avastin in the NHS.

The full article contains 328 words and appears in n/a newspaper.
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  • Last Updated: 07 March 2008 10:38 AM
  • Source: n/a
  • Location: Halifax
 
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Don Matteiu,

07/03/2008 10:46:44
But yet we can pay for a road side census.What a joke.
2

The Flying Dutchman,

07/03/2008 10:50:48
God bless the NHS. I'm sure I pay national insurance contributiones each month for just such an eventuality. God help us all!
3

,

07/03/2008 10:55:31
Comment Reported Unsuitable By User
4

,

07/03/2008 11:08:25
Comment Reported Unsuitable By User
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hmmm77,

07/03/2008 11:20:32
I'm just glad my National Insurance 'contributions' are being well spent on buying new leather chairs for offices and buying in more red tape as supposed to being wasted on trivial things like this. God I hope I never get seriously ill.
6

Lisa Youell,

07/03/2008 12:27:51
Although it's too late for our wonderful grandad, we are still campaiging for others who need this drug, so please sign our petition

http://petitions.pm.gov.uk/Avastin/
7

,

07/03/2008 12:31:04
Comment Reported Unsuitable By User
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Dr Justice,

07/03/2008 13:15:37
Our thoughts are with you.
9

NHSharon,

Halifax 07/03/2008 13:27:16
I do wish people would stop slanging off the NHS. N.I.C.E are responsible for funding any form of drug. The NHS would love to be able to give all patients this treatment but their hands are tied so if you want to have a beef, then have one with them. There website address is www.nice.org.uk
10

It never ends!,

USA 07/03/2008 13:49:32
It seems as if the USA is not the only country to ration health care. We have 43 million uninsured people. Whether or not you can get insurance depends on a number of factors, not just money. Care is rationed to those who can pay, or who's insurance will pay. The bottom line is that many who need it go without.
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