And that was 12 months of fund-raising to pay for adaptations.
She and her husband, Stefan, also had to remortgage their house to build an extension.

Rebecca, now nine, has a progressive neurological condition that means she cannot walk, talk or feed herself.

She needed a lift, hoists in the bathroom and bedroom and a height- adjustable bath.

Jeanette and Stefan had to lift and carry Rebecca to move or bathe her.
At the time, adaptations were means-tested.

Jeanette lobbied to change the system to stop means-testing, but even so, the limit is £30,000.

"Even though the amount has increased I don't feel it is enough to warrant what you need," she said.

Recently she has had to go to charities for funding for a buggy for Rebecca, who attends Woodbank Special School.

She said: "It is a waiting game. But when you need a piece of equipment, you need it now, not months down the line.

"We are constantly chasing, writing letters and phoning.
"You have to keep chipping away just to get the things you need, which does grind you down, but that is what we have to do."