Help find a cure for Charlie, pleads dad

Brave tot: Skye Raven, 22, and Adam Booth, 21, with their son Charlie, 13 months
Brave tot: Skye Raven, 22, and Adam Booth, 21, with their son Charlie, 13 months

A YOUNG family has urged people to donate to charities seeking a cure for the life-threatening condition affecting their son, Charlie.

The 13-month old has cycstic fibrosis – an inherited illness that affects internal organs, clogging the lungs and digestive system with mucus, making it hard to breathe and digest food.

Parents Adam Booth, 21, and Skye Raven, 22, of Woodside Place, Boothtown, Halifax, have to put the brave tot through gruelling physiotherapy more than twice a day to clear his lungs.

Charlie also has to take a daily cocktail of drugs and vitamins.

Mr Booth said: “It was a massive shock when we found he had cystic fibrosis. Even as a baby and now as a toddler, he can’t go to baby groups in case any of them have a cold. Even a simple cold could turn into a chest infection. So growing up he’s going to have to be quite careful.

“There’s no cure but they’re working to get one but it costs £6million to cover clinical trials.” Mr Booth said he hopes a cure can be found soon. “There’ve been so many advances. Just 25 years ago, kids weren’t living and now they’re making it into their 30s and 40s.” He urged people to donate to the Cystic Fibrosis Trust via www.justgiving.com/skye-raven or visit www.cftrust.org.uk.