Help my sick baby live her life to the full

Sharon Booth, Kebroyd Lane, Kebroyd, with her twin daughters Matilda and Layla.
Sharon Booth, Kebroyd Lane, Kebroyd, with her twin daughters Matilda and Layla.

The mother of a baby girl born paralysed from the chest down has began the fight for her daughter’s independence.

Mum-of-seven Sharon Booth gave birth to her second set of twins Matilda and Layla on September 1, 2011.

Half-way through the pregnancy, Sharon received the devastating news from doctors that one of the twins – Matilda Rose - was suffering from a severe form of Spina Bifida.

Matilda – born with fluid on the brain - had to undergo a 12 hour emergency operation at just 16 hours old to save her life, to put her spinal cord back in her back and to insert a drainage tube in her brain.

“It’s kind of a split emotion, you’re so happy for one but then you’re grieving,” said 42-year-old Sharon, of Ripponden.

In 23 months Matilda has been to theatre 13 times, had brain surgery seven times, and hip, leg and feet surgery three times. She remains paralysed.

Now as she approaches her second birthday, Sharon has began her plight to ensure Matilda gets the best out of life.

She said: “We are hoping to raise up to £5000 to enable Matilda to go to a charity called Brainwave, where she will be assessed on her physical, sensory, cognitive and educational abilities.