Marathon dad’s third London race for Hollie

Adam Shaw will be running London Marathon for his daughter, Hollie Shaw, seven, who suffers from a rare skin condition and for Debra charity.
Adam Shaw will be running London Marathon for his daughter, Hollie Shaw, seven, who suffers from a rare skin condition and for Debra charity.

A DOTING dad is warming up for his third London marathon in aid of a charity that helps his daughter.

Seven-year-old Hollie Shaw suffers from dystrophic epidermolysis bullosa (EB), a painful and rare condition which causes her skin to blister and peel.

Her father Adam is running in tomorrow’s race to raise money and awareness for DebRA, the only national charity for EB patients.

The 31-year-old, of Rustic Avenue, Southowram, said: “The “glue” that holds a healthy person’s skin together, she is reduced in that quite a lot.

“It means that with any kind of friction from her clothes, or any knocks from other children, her skin can shear off leaving it raw, or it can form a blister.”

Hollie’s illness also means she uses a wheelchair and has to be fed by a tube into her stomach during the night.

Mr Shaw, who trains with the Stainland Lions running club, said thoughts of his daughter would spur him on to the finish line.

“The trainers I used in my last marathon I was wearing to train the other day, and about three miles in I started getting blisters from them.

“Then I think this is what Hollie has to put up with, sometimes on a daily basis.”

Mr Shaw has already raised £245 towards his £1,500 target.

Hollie’s mum Leah Taylor, 31, of Ravenstone Drive, Greetland, is also preparing for the Great North Run in aid of DebRA.

The cash they both raise will help the charity fund research into the condition and provide care for sufferers.

“They are making big advances in research but an actual cure is a good few years off,” said Mr Shaw.

“That’s why fund-raising is so vital.”

l To donate, visit www.justgiving.com/runningformygirl

London marathon entrant Steve Quick has had plenty of help and inspiration to get to the start line.

Children at Gingerbread House Nursery, Southowram, run by his wife Sally, have raised £300 to help him towards his target.

Staff organised a mini marathon and 19 children aged from eight months to 11 years-old took part.

“They all kept going for as long as they could,” said Sally.

Steve, the sports centre manager at Hipperholme and Lightcliffe High School, has been training hard to raise £1,700 for the Anthony Nolan trust.

“He’s been a donor since he was 18 and donated three years ago. It’s a cause very close to his heart,”

To sponsor Steve visit www.justgiving.com/stephen-quick

Greg McCarthy will run to raise money for the Children’s Trust.

His niece, Bethany, who lives in Kent receives rehab from the charity after a car accident left her with a brain injury. Her sister, Nia, was also hurt in the smash.

Greg, from Hebden Bridge, will be in good company - running with his sister, Beverly.

“I am determined to raise as much money as possible for The Children’s Trust which is providing rehabilitation to Bethany. To date, I have already raised £1,500 and I hope as many of my friends and colleagues will show their support,” said Greg who hopes to finish the race within six hours. To sponsor him as he pounds his way round the pavements visit www.justgiving.com/Gregory-McCarthy