A BRAVE Halifax family are getting ready to see themselves on television next week.
Archie Beverley, of Cleveland Avenue, Siddal, Halifax, will appear with his family in a day of coverage on ITV.
From Daybreak in the morning until the 10pm news there will be a host of programme raising the plight of children whose conditions do not have a name.
It is thought 30 to 50 per cent of disable children do not have a clinical diagnosis.
It means the families struggle to fit in at support groups and there are plenty of unknowns.
Archie, who turns five in January, has global development delay with complex learning difficulties.
The family have teamed up with other families in the SWAN – Syndromes Without A Name – group.
The project is run by Genetic Alliance UK to offer the families support and information they need.
Patsy was contacted through a Facebook group and agreed to appear to raise the profile about their lives including Archie’s school days at Woodbank school and life with Dad Wayne, Mum Patsy and brother Leon.
The running order is yet to be finalised but the families film will be shown in Yorkshire, and is expected to appear on the Calendar news during the day.
“The whole day is to raise awareness that there’s lots of children who don’t have a name for their conditions. It also helps raise the profile of the charity
Keep an eye out on Daybreak too as some of the families will be featured on the breakfast time programme.
Each family has recorded a video about their life including the Beverley family on www.youtube.com/SWANchildrenUK
To join the group call project co-ordinator Lauren on 0207 704 3141.