The mother and grandmother of a little boy who has an extremely rare heart condition are taking the plunge to raise money and awareness of Jaxon’s condition.
Four-year-old Jaxon Green-Moore’s incurable Leopard syndrome, which means his heart could stop beating at anytime, is so rare - just 200 people worldwide have been diagnosed.
Heidi Green, 39, of Queesnbury, and Pat Bingham, 69, of Northowram, are taking part in the Swim the Channel challenge for Helping Hearts Heart Research UK.
The mother and daughter duo say they want to be proactive about raising awareness and money for the charity that helps Jaxon and others affected by heart problems.
Heidi said: “People think heart disease only concerns over-weight people, smokers and drinkers - but it’s really not like that - there are a lot of adults and children suffering with heart conditions through no fault of their own.”
Pat has swam all of her 22-mile Channel challenge and Heidi, who with four children under the age of eight has a little less time on her hands, has under half of the distance to go in less than two weeks. Between them, they will have swam 1,770-lengths of the DW, Halifax, swimming pool.
Heidi says her partner Rob Moore and children Teegan, eight, Tailla, six, Zachariah, five, and Jaxon have all cheered on their mother and grandma.
“It’s tough - we never know how long he will be here with us. He celebrated his fourth birthday recently - we never expected him to get so far; we’re over the moon.
“Jaxon struggles with daily things like walking to school because his heart is so enlarged, the muscle so thickened and his heart valves narrowed. He is prone to picking up illnesses because of his low immune system. We want more people to know about his condition and the work of Helping Hearts charity, based in Leeds.”
So far, Heidi and Pat have raised £500 - to donate see virginmoneygiving.com/team/JaxonTy