Pair’s help for SWAN tot

Rachel Hendry with her son Jacob
Rachel Hendry with her son Jacob

A baby who was born with 12 fingers and 12 toes captured has hearts across the globe.

Seven-month-old Jacob Duffy amazed doctors when he was born with 24 digits last year.

He suffers from an undiagnosed complex syndrome which has left him with a hole in his heart and a number of eye conditions that have left him almost blind.

Jacob is one of 6,000 disabled British children born every year who have no overall diagnosis for their condition - known as SWAN (Syndrome Without A Name) children.

But the adorable tot is now the first beneficiary of mobile sensory equipment provided by Dexter’s Light, a charity set up by a couple who lost their one-year-old son to a rare genetic condition.

James Cook, originally from Salendine Nook, and Gemma Littley, originally from Greetland, have worked tirelessly since their son’s death to raise funds for a mobile sensory room for babies and toddlers. And they are delighted that Jacob will benefit from the equipment until his family can raise enough money to buy their own.

James, 37, said: “Jacob is a lovely little boy, we delivered the equipment and to see his little face light up was a really moving moment.

“That’s what we do it for, it really does make a difference.

“We want even more children to come forward, from Calderdale or anywhere in the North of England, we’ve managed to do some more fundraising and we are are well on the way to buying our second lot of equipment.

“It can be loaned for free and people can contact us through our website”

Jacob’s doting family are now on a fundraising mission which has already seen donations flooding in from as far afield as Brazil from people touched by their story

Mum Rachael Hendry, 24, said: “He absolutely loves the equipment, it’s in our living room so he can use it any time.

“If you meet him you would fall in love with him but strangers have donated as much as £50 – it is just amazing.

“It’s really surreal to think that people are interested and care about Jacob.” The family from Middleton, Leeds, are hoping to raise around £15,000 for the equipment for Jacob’s own sensory room. To donate, visit