TINY TOT Amelie Gledhill will appear in her own TV documentary this month.
The show, called The Real Thumbelina, follows the journey of Amelie and her family as they try find ways for her to live a normal life. Amelie Gledhill, a pupil at Old Earth school in Elland, has Russell Silver Syndrome, a genetic disorder which limits her growth. She is just 85 centimetres tall
Mum Anne said: “I worry about her being bullied.
“Nobody’s ever been able to give us that insight into the future.” When she was born at 37 weeks, Amelie weighed just 5lb 9oz but her parents were told she was fine.
“Everybody kept saying, ‘She’ll be fine. She’s small, she’ll catch up.’
“We had to go through that a lot before people actually realised, no, actually she’s not going to catch up and this is how she is.
“We’ve tried so hard not to wrap her up in cotton wool right from the word go because I don’t think it would do her any good.
“But there are times even now where children, and I don’t think they mean to be malicious, but when she’s standing with her walking frame and they try to help her and push her and she falls over and she’ll get up and look a bit forlorn and my heart just goes.”
Amelie’s condition means a wide range of medical problems and she’s constantly in and out of hospital.
She has eating problems, and has to be fed by a tube into her stomach 20 hours a day to ensure she receives enough nutrition.
The documentary documentary followed the family to America to meet the world’s leading specialist in Russell Silver Syndrome, Dr Madeline Harbison.
They also went to an international event, organised by the charity The Magic Foundation, which gave Amelie the chance to meet other children with the condition.
One option that came out of the treat would be for Amelie to have spinal surgery and to try a growth hormone.
The programme will be shown on ITV at 9pm on December 12.
Producer and director Barnaby Peel said: “I was privileged to be able to spend time filming several families who kindly agreed to let our cameras into their lives as they face the challenges of Russell Silver Syndrome.”