Brighouse charity raises £100k for common genetic condition

The charity has done this with the help of generous volunteers and supporters, who donate time and money in aid of the charity’s mission of finding a cure or treatment for mitochondrial disease.

Mitochondrial disease, also known as mito, is one of the most common genetic conditions affecting 1 in 4,300 adults and yet little known. It is progressive and can be life-limiting. There is currently no treatment or cure.

Mitochondrial disease affects the mitochondria – the “battery packs” in our cells. When they fail to produce enough energy, damage occurs – especially to the major organs.

Coronation Street has recently featured mitochondrial disease in the storyline of Oliver Battersby, who passed away from the disease.

Mito can affect anyone of any age, which is a message My Mito Mission is passionate about sharing. Christine Beal set up the charity after her daughter, Emma Beal, was diagnosed with mitochondrial disease in 2015.

Two years following this, she sadly passed away, aged 28.

Christine said: “We launched our charity with Emma very much at the heart of it herself, keen to make a difference.

"To have reached this fundraising landmark despite losing her unexpectedly in 2017 and this year, a national pandemic which erased so many of our plans, is testament to the dedication of our wonderful volunteers and fabulous supporters.

“From supermarket bag packs to sponsored events, birthday fundraisers to bungee jumps - the array of fundraising events and activity has been just incredible. It’s also fantastic that we now have other missions around the UK who have contributed to the achievement.”

My Mito Mission gives those with mitochondrial disease the opportunity to set up their own mission, under the umbrella of the charity.

Christine said: “£100,000 will enable much-needed research and support – but the awareness we raise alongside it is priceless. Our mitochondria are key to our general health and their dysfunction known to be involved in many common conditions, both mental and physical.

"We look forward to raising even more awareness and funds - and sincerely thank everyone for their continued support.”